posted on 2020-06-28, 00:36authored byMelbourne Academic Centre for Health (MACH)
BRAIN
is a prospective, non-interventional clinical registry of the treatment and
outcomes of patients with brain tumours managed at participating hospital in
routine clinical practice.
History
Institution name
Walter and Eliza Hall Institute of Medical Research (WEHI)
Unit name
Walter and Eliza Hall Institute of Medical Research (WEHI)
Participating institutions have access to datasets for all patient data but can only see their own sites data. They get ethics and governance approval.It collects clinical data but research questions can be answered according to the datasets generated. Melbourne Health Bendigo Health Royal Hobart Hospital St Vincent's Hospital Melbourne Alfred Health Monash Medical Centre South West Health Care
Number of people/participants
5000+
Data source
Clinical
Research
Data source details
It collects clinical data but research questions can be answered according to the datasets generated. It is undergoing migration to accept registry trials.
Study or collection type
Clinical register
Data collection started
1999
Dataset still being added to?
Yes
Additional comments
The contributors to this project are in two streams. Participating institutions have access to datasets for all patient data but can only see their own sites data. The funders are able to ask for de-identified reports. This is approved internally by the Data Analyst at BioGrid and these projects receive full ethics and governance review at participating centres. Migration ongoing at the moment to accept registry trials data to be captured.