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KRAB: Kidney canceR Australian registry and Biobank (Renal Cell Carcinoma)

dataset
posted on 2020-06-28, 00:36 authored by Melbourne Academic Centre for Health (MACH)
This multi-centre project aims to collect clinical data and access biospecimens from patients with Renal Cell Carcinoma (RCC) in Australia.

History

Institution name

Walter and Eliza Hall Institute of Medical Research (WEHI)

Unit name

Walter and Eliza Hall Institute of Medical Research (WEHI)

Principal contact name

Maria Edmonds

Principal contact email address

edmonds.m@wehi.edu.au

Dataset ID

https://www.biogrid.org.au/data-directory

Available for research?

  • Yes

Collaborating institutions information

Melbourne Health Ashford Cancer Centre Adelaide Cancer Centre Austin Health Eastern Health PMCC Newcastle Calvary Mater Western Health Private Room of Andrew Weickhardt Private Room of Jeremy Shapiro Private Room of Arun Azad Private Room of Ben Tran

Number of people/participants

130

Data source

  • Clinical
  • Research

Data source details

It collects clinical data but research questions can be answered according to the datasets generated.

Study or collection type

  • Clinical register

Data collection started

2018

Dataset still being added to?

  • Yes

Additional comments

The contributors to this project are in two streams. Participating institutions have access to datasets for all patient data but can only see their own sites data. The funders are able to ask for de-identified reports. This is approved internally by the Data Analyst at BioGrid and these projects receive full ethics and governance review at participating centres