Requirements for Brain-Computer Interfaces of People with Multiple Sclerosis (Survey Results)

dataset

posted on 2024-07-03, 07:56 authored by Kirill Kokorin, DAVID GRAYDENDAVID GRAYDEN, Sam JohnSam John, Chin-Hsuan LinChin-Hsuan Lin, John RussoJohn Russo, Ashley ReynoldsAshley Reynolds, Tim Mahoney

A detailed description of the study is available here. Please cite the following article when using this data.

John S. Russo, et al. Towards Developing Brain-Computer Interfaces for People with Multiple Sclerosis. arXiv. Apr 9, 2024.

Overview

This study surveyed people with multiple sclerosis to understand their interest in brain-computer interfaces (BCIs), bionic applications, device preferences, and development considerations and related these to symptoms and assistance needs. Thirty-four participants took part in the anonymous survey. This study was approved by the University of Melbourne Human Research Ethics Committee (ID: 26078).

Data

survey_results.csv contains the survey results. The first row contains column headings, the second row briefly describes each column/question, and the remaining rows contain participant responses. In Q10.1 and Q10.2, participants list activities they currently find difficult or worry they may find difficult in the future. These were manually labelled into categories of Moving, Self-care and Working by the authors in G10.1 and G10.2. In Q12.1-Q12.4, participants rank their BCI preferences from 1 (most preferred) to 4 (least preferred).

survey.pdf contains the survey, which was distributed via Qualtrics. Participants ranked their preferences for only a single BCI scenario in the online survey.