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Victorian Cerebral Palsy Register
dataset
posted on 2020-06-25, 05:26 authored by Melbourne Academic Centre for Health (MACH)The Victorian Cerebral Palsy Register collects information on people with cerebral palsy, born or living in the Australian state of Victoria since 1970. The Register was founded by Professor Dinah Reddihough in 1987 and is now one of the largest geographically-defined cerebral palsy registers in the world, holding information on over 5200 individuals with cerebral palsy. Information collected on individuals includes demographic information, birth details, known or apparent causes, type and severity of the cerebral palsy and any associated impairments.
History
Institution name
Royal Children's HospitalUnit name
Neurodisability and RehabilitationPrincipal contact name
Dinah ReddihoughPrincipal contact email address
dinah.reddihough@rch.org.auDataset ID
https://www.mcri.edu.au/research/projects/victorian-cerebral-palsy-registerAvailable for research?
- Yes
Collaborating institutions information
Yes. Data shared with national CP register.Number of people/participants
6,000 +Data source
- Clinical
- Research
Data source details
The dataset is primarily used for epidemiological research but also acts as a sampling frame for clinical and other research.Study or collection type
- Diagnostic database/databank
Data collection started
1987Dataset still being added to?
- Yes
